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Saving Baby Hadi from Pompe Disease

Little Hadi Shah, just 8 months old, is facing a formidable battle against Pompe disease. Born to Fauziya and Shah Fahad, Hadi has been struggling with delayed milestones and breathing difficulties for the past two months. Pompe disease, a genetic disorder, disrupts the body's ability to process sugars, leading to dangerous accumulations in vital organs, particularly the heart and muscles.

Enzyme therapy stands as the only beacon of hope for Hadi, but its staggering cost of Rs 75,000 per 50gm vial is a mountain too steep for his family to climb alone. Each dose, administered intravenously every two weeks, is essential for his survival. Additionally, Hadi will require ongoing medical support and physiotherapy to manage the disease's complexities. Every gesture of assistance, no matter how small, could make an immeasurable difference in this brave family's journey. Please, let's come together to offer Hadi the chance he deserves to thrive. Your compassion could be the lifeline he desperately needs.

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